Saturday, 17 November, 2018

Epileptic boy, 12, will get cannabis oil

Epileptic boy, 12, will get cannabis oil Epileptic boy, 12, will get cannabis oil
Steven Clarke | 17 June, 2018, 15:45

MPs are calling for a change in the law to allow cannabis oil to be used medicinally, following the recent case of a severely epileptic boy being permitted to use the oil by the Home Office.

Caldwell's condition deteriorated after customs officers in London confiscated cannabis oil used for his treatment on Monday, as the boy and his mother were returning home from Canada.

She said Billy suffered two severe seizures overnight and that the cannabis oil is the only substance that can prevent life-threatening seizures for him.

Billy will get the medication sometime after 2pm today. Keen to get back to her son's bedside, she said: "I am full of hope - this is my little boy's anti-epilepsy medication".

He said his decision was based on advice from senior doctors who say that Caldwell, who was hospitalized overnight in London, faces a medical emergency.

She added: "The Home Office, myself and my team have been working extremely hard throughout the night to make this happen, which is truly awesome, but there can only be one conclusion here: that my attractive sweet little boy, who has a life-threatening form of epilepsy and one seizure can kill him, he needs his medicine back today".

Javid said the government's immediate priority was to make sure the boy received "the most effective treatment possible in a safe way".

She said earlier that the denial of the medicine by British officials was "beyond cruelty".

"The Policing Minister met with the family on Monday and has been working to reach an urgent solution".

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She vowed to keep up her fight to allow others in the United Kingdom to have access to the medication they need.

Speaking to BBC Breakfast, Caldwell said: "This experience, that myself and my little boy have endured in this last week, I do not want, and I will not stand by and let, any other family in our country endure".

"Children are dying in our country and it needs to stop now".

"Billy should never have been put in that position".

She said: "We have experts at Chelsea and Westminster who have seen the improvement in Billy. I can not thank the staff at the hospital enough".

Ms Caldwell made the journey to Toronto, Canada with her son to get a six-month-supply to treat up to 100 seizures a day - but border officials seized the oil.

'Despite the best and honest efforts of the NHS, frontline doctors are fighting Billy's condition with both hands tied behind their back because the only medication that will be effective is the cannabis oil (with a banned component)'.

But the boy's doctor was told by Home Office drug enforcement teams to stop prescribing the medication, which Ms Caldwell credits with keeping her son's seizures at bay.

Now the medication had been released by the Home Office and is on its way to the hospital where the youngster is being treated.

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